After the news yesterday, there was a huge weight on my heart. I was so touched by the outpouring of love I felt from loved ones near and far. That love is what kept me afloat. I felt like I was holding on by my fingertips to hope, and as I read people's comments on my blog or facebook or texts on my phone it was like angels were lifting me up. So thank you. It is amazing what just an "I love you" can do.
I was still worried and have been in a never-ending conversation with my God I feel like since yesterday. My hubby finally told me I should call the doctor back and voice all my worries and ask more questions. I'm glad I listened, because she was able to soothe my mind. As I spoke with my neurologist, I was able to see that she was trying to balance my risk of getting PML (the deadly brain infection) with my risk of having an MS relapse. She also assured me that if she thought I would get PML, she would take me off of the Tecfidera altogether. So I am at a much greater risk of having an MS relapse than getting PML, and in this case that is saying a lot, haha!
It is difficult to put my health in the hands of someone I hardly know, much less feel I can completely trust with my life. But I can trust my Heavenly Father, and I feel like He put this doctor in my life right now to ease my mind and help me through this possible transition.
Amazing writing! Thank you for sharing. I was recently diagnosed and this blog had helped me.
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