Friday, August 2, 2013

The New "Normal"

I had a neurologist appointment yesterday morning at 8am.  I try to make them super early so my husband can come with me and then go to work.  So we took the kids along too, which my neurologist is okay with because he has 3 rugrats of his own at home.

So to update you a little bit, I had a huge relapse in May, where I lost feeling in my legs and had vision problems.  I got feeling back in my legs fairly quickly, but the vision problems lasted for a month and a half.  About the time the vision problems finally cleared up, the leg tingling came back.  And it hasn't gone away since.

I told my neurologist this at our appointment yesterday and he then proceeded to tell me that this may be my new "normal."  Meaning it may NEVER come back.  He made a graph in the air with his finger that looked something like this:

Then he said I may never go all the way back down.  LOVELY.

He then went through my most recent MRI and pointed to a lesion in my spine that he says he thinks is the culprit. Luckily, he doesn't think I have progressed to Secondary Progressive MS because I can still move my legs just fine, it is just a sensory problem.  Apparently Secondary Progressive MS is more of a muscular problem.  That was a HUGE relief, as there are currently no treatments for Secondary Progressive MS.  He also said I have no "black holes" in my brain which really cause problems, so that's good!

So my MS could still really be a lot worse, but it's still an adjustment to get used to the new "normal."  I know that God will not give me more than I can handle, so sometimes I wonder if I should be flattered by how much He seems to think I can take... haha! 

1 comment:

  1. My daughter is going through lots of testing to either eliminate a prognosis of MS or something else! Spinal tap and another CT scan on Tuesday. Thus far her scans have been normal, but her optic nerves are gray. She has other non-MS issues she deals with. I will be giving her the link to your blog.

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