The past two days have been an emotional roller coaster! Yesterday I had an appointment with a new neurologist at the office I have been going to where I did not like my neuro. I was delighted to find that this neuro actually specialized in MS! (Why they didn't assign me to her in the first place is beyond me.) She also has very good people skills (a rare find in neurologists) and is good at explaining things, and has children just like I do. She seems like the perfect fit! I am ecstatic.
THEN. Today I get a call from her with the results of the blood work they did at yesterday's appointment. My lymphocyte count is WAY below where it should be, which puts me at risk of developing PML (a deadly brain infection) while taking Tecfidera (the drug I'm on right now). Woah. Fear sets in. She wants me to go down from two doses of Tecfidera a day to one for the next month and see whether my lymphocyte count goes back up. This will put me at a higher risk for an MS relapse, but lower my risk for PML.
I am terrified. What if I have PML already? The symptoms are clumsiness (I am already that), progressive weakness, personality changes. Those are such hard things to measure... I will get an MRI in a couple of weeks that will see if I already have it, until then I just have to wait and pray. I hug my babies. I can't imagine what would happen to them if I were to leave them already. But I can't let myself go down that thought path or I will drown in fear. So I force a smile and I'm going to go wash the dishes now.
